Working in partnership with the African Catholic missionary order Daughters of Mary Mother of Mercy, Victor’s Hope Foundation provides for ongoing health care support and medical supplies for the Nigerian disability center, orphanages and medical clinics operated by the Sisters, along with establishing a Neurofibromatosis clinic.
Neurofibromatosis (NF) is the term for three distinct genetic disorders – NF1, NF2 and Schwannomatosis. Each causes tumors to grow on nerves throughout the body. Usually diagnosed in childhood, NF is a lifelong disorder with complex symptoms, including tumors of the brain, optic nerves, and the nervous system, and it often creates learning disabilities, sleep disorders and depression. NF1 occurs in 1 of approximately 3,500 births. NF2 is much rarer than NF1, occurring in 1 in 25,000 births. NF affects both sexes and all races and ethnic groups equally and is more prevalent than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined.